Young people with type 1 diabetes transition services Version1

  • Research type

    Research Study

  • Full title

    Experiences of young people with type 1 diabetes who access transition services.

  • IRAS ID

    249168

  • Contact name

    David Gillanders

  • Contact email

    david.gillanders@ed.ac.uk

  • Sponsor organisation

    University of Edinburgh (College of Arts, Humanities & Social Sciences)

  • Duration of Study in the UK

    2 years, 0 months, 1 days

  • Research summary

    Little research has looked at transition and young peoples’ experiences of this in Scotland. The project will address this gap. \n\nThe project will focus on the experiences of young people with type 1 diabetes aged 16 – 22 years of age who access a specialist NHS diabetes transition service. The transition during adolescence into adulthood is a particularly difficult time for young people with diabetes. Therefore this project will also help shed light on how developmental processes for young people interface with diabetes self-management, their relationships with specialist diabetes health services, and how this is managed and negotiated in terms of the young person’s developmental journey and developing sense of self.\n\nA qualitative methodology, using semi-structured interviews will be used. This will give some structure to the interview, but still allow flexibility for young people to share their experiences.\n\nAs it is anticipated that the focus of the project will be on young people’s experiences of accessing the diabetes transition service, and the findings will be used broadly at a service level, it is felt that Thematic Analysis is best suited to answer the research aims of the project.\n\nThis project will help shed light on the different factors and their impact on promoting or hindering engagement. The results of this project will help inform the delivery of the diabetes transition service in NHS Grampian but potentially in other transition services in other health boards in Scotland and the rest of the UK. The results could also help services nationally and internationally consider the way they deliver and engage with young people with diabetes, and potentially other chronic health conditions.\n\nIncreasing engagement in diabetes transition services could help improve outcomes for young people, at the level of the young person, as well as at a wider service level.\n

  • REC name

    London - South East Research Ethics Committee

  • REC reference

    18/LO/1654

  • Date of REC Opinion

    18 Sep 2018

  • REC opinion

    Favourable Opinion