Young people living with type 1 diabetes and coeliac disease.
Research type
Research Study
Full title
Young people's experiences of living with a diagnosis of Type 1 Diabetes and Coeliac Disease: a grounded theory approach.
IRAS ID
162675
Contact name
Nathalie Gray
Contact email
Sponsor organisation
Leicester Partnership NHS Trust
Duration of Study in the UK
1 years, 8 months, 30 days
Research summary
Type 1 Diabetes (T1DM) is a chronic condition where the body cannot produce insulin, leading to high levels of glucose (sugar) in the bloodstream. If glucose levels become too high, it can cause serious damage to the body's organs. Previous research has suggested a link between T1DM and Coeliac disease (CD). CD is a condition where the body has an allergic response to gluten, a protein found in wheat, barley and rye. Young people who have a diagnosis of T1DM are at increased risk of a later diagnosis of CD. The treatment for T1DM involves daily monitoring of the foods eaten and administering specific doses of insulin to help the body process this. Treatment for CD is a gluten-free diet, which can effect a young person's management of their T1DM.
Research has looked at people’s experiences of living with T1DM or CD. However, there is very limited research on the experiences of young people living with both conditions. The aim of the proposed study is to look at young people’s experiences of adjusting and coping with both T1DM and CD. Young people aged 11 to 18 years living with both conditions will be interviewed about their experiences of living with both conditions. The interviews will be audio-recorded and analysed using a grounded theory approach. This means that the researcher will use the data to develop a model of understanding, which may explain how young people adjust and cope with living with both conditions.
This research project aims to help address gaps in the literature and enable families and professionals to have a better understanding of how young people adjust and cope with living with T1DM and CD. It is also hoped it will inform practice in supporting young people facing difficulties and challenges in living with both conditions.REC name
East Midlands - Leicester South Research Ethics Committee
REC reference
15/EM/0136
Date of REC Opinion
30 Apr 2015
REC opinion
Further Information Favourable Opinion