Young Citizens' voice in quality inpatient care (Version 2)

  • Research type

    Research Study

  • Full title

    Young citizens' voice as service users in the quality of inpatient care: A case study using a qualitative approach and participatory activities.

  • IRAS ID

    194594

  • Contact name

    Sue Collier

  • Contact email

    susan.collier@pgr.anglia.ac.uk

  • Sponsor organisation

    Anglia Ruskin University

  • Duration of Study in the UK

    0 years, 9 months, 4 days

  • Research summary

    Organisations and healthcare professionals aim to make appropriate decisions to protect children and act in their best interests. The voice of children and young people (CYP) is underpinned by the United Nations Rights of the Child International Agreement (United Nations, 1989). The Government strives to include the voices of children as consumers of healthcare to gain insight to their experiences in hospital as service users. Research benefits will contribute to existing knowledge underpinning practice thus enabling educators, managers and children’s nurses to review/make appropriate adjustments to their practice.

    This study aims to recognise the contribution CYP make/wish to make to decisions related to their care and how their healthcare workers are able to facilitate their involvement. Children and young people will be recruited to three age groups each with different strategies to tell inpatient narratives: 5-7 year-olds will choose to use either an activity book or hospital themed play-set; 8-11 year-olds have the option to use Fuzzy felts; 12-16 year-olds will be able to use an optional activity book or gather their thoughts in preparation for a short recorded conversation.

    The research takes a multi-layered approach to gaining informed consent through professional stakeholders and parents and subsequently to approach the children and young people for their informed assent (See section 8.3). It is anticipated that 24 participants will take part.

    The study has a qualitative research design, using a case study approach and participative methods. It will take place on the children’s inpatient ward in a single National Health Service Hospital. The research design will enable the researcher to contextualise the CYP’s stories to the NHS Values. A small group of CYP have given feedback on the research design/tools.

    The principal research question is “to what extent do young citizens have a voice in ensuring the quality of their inpatient care?”

  • REC name

    London - Fulham Research Ethics Committee

  • REC reference

    18/LO/2156

  • Date of REC Opinion

    11 Feb 2019

  • REC opinion

    Further Information Favourable Opinion