Worldwide Alcohol related Liver Disease Outcomes study

  • Research type

    Research Study

  • Full title

    Worldwide Alcohol related Liver Disease Outcomes study

  • IRAS ID

    254195

  • Contact name

    Richard Parker

  • Contact email

    richardparker@nhs.net

  • Sponsor organisation

    Leeds Teaching Hospitals NHS Trust

  • Duration of Study in the UK

    9 years, 11 months, 30 days

  • Research summary

    Alcohol related liver disease (ArLD) is a common disease that causes significant ill health and premature deaths. ArLD is by far the commonest cause of liver-related deaths in the UK. Despite its prevalence, research into ArLD has historically been underfunded. As a consequence, understanding and treatments for ArLD have lagged behind compared to other, less common, liver diseases.
    The Worldwide ArLD Outcomes (WALDO) study is designed to be a comprehensive natural history study of ArLD and to underpin the design of a universally applicable assessment system in ArLD. This will improve our knowledge of the course of the disease and improve the consistency of assessment, allowing improvements in both clinical and academic management of ArLD.
    To do this WALDO will use routinely collected medical data from a number of centres to create a cohort of patients with biopsy-proven ALD. No additional tests are planned and no additional sources of data will be used other than the medical notes in each contributing centre. Fully anonymised data will be pooled to allow for evaluation of medical outcomes in the first stage of the project, which will describe the natural history of ArLD. In the second stage of the study, the assessment of liver biopsies in ArLD will be addressed using digital pathology techniques to allow the development of a system of histological assessment that is firmly linked to patient-relevant outcomes.

  • REC name

    London - London Bridge Research Ethics Committee

  • REC reference

    18/LO/2132

  • Date of REC Opinion

    7 Dec 2018

  • REC opinion

    Favourable Opinion