Working age adults' experience of living with central post-stroke pain
Research type
Research Study
Full title
The experience of working age adults living with central post-stroke pain: An Interpretative Phenomenological Analysis
IRAS ID
257441
Contact name
Johanna Bruger
Contact email
Sponsor organisation
Research & Innovation Services
Clinicaltrials.gov Identifier
N/A, N/A
Duration of Study in the UK
1 years, 2 months, 26 days
Research summary
After a stroke, people often feel their life has changed. There can be changes in memory, thinking, mobility, language and mood. Some people also have pain as a result of their stroke. Most pain can be managed through medication and physiotherapy, but central post-stroke pain (a pain caused by damage to the central nervous system) is harder to treat.
This study will explore working age adults’ experience of living with central post-stroke pain. People of working age (18-64) have different responsibilities (e.g. work, family and finance) to people of retirement age, based on this they are likely to have a unique experience of living with central post-stroke pain.
People taking part in the study will be contacted through NHS services and stroke/pain charities. They will meet with the researcher for a 60-90 minute interview that will be recorded. The researcher will ask questions about their experience of the pain, the impact the pain has on their life and their experience of managing the pain.Two previous studies have explored people’s experience of central post-stroke pain and their ways of coping. However, this study will be the first to focus on working age adults in the UK. Findings of this study will be fed back to people who took part and will be published at a conference and/or in a research paper.
It is hoped that this study will increase awareness of central post-stroke pain and increase knowledge of it in healthcare professionals, family members and friends; this might lead to improved support and care for people with central post-stroke pain. Insights from the study might also help others who live with central post-stroke pain by making them aware that they are not alone in facing the condition.
REC name
London - South East Research Ethics Committee
REC reference
19/LO/0326
Date of REC Opinion
6 Mar 2019
REC opinion
Favourable Opinion