Who to tell, how and when? Version 1.2
Research type
Research Study
Full title
Who to tell, how and when? An intervention to support people living with dementia who are fearful of disclosing their diagnosis to others
IRAS ID
232901
Contact name
Georgina Charlesworth
Contact email
Sponsor organisation
University College London or University College London Hospital Trust
Duration of Study in the UK
1 years, 7 months, 31 days
Research summary
The primary aim of this research is to establish the feasibility of a manualised intervention programme to support people living with dementia who are fearful of disclosing their diagnosis to others.
This aim will be achieved through three objectives:
(1) to adapt existing tools to measure stigma stress, self-stigma and secrecy in people living with dementia– Psychometric Study
(2) to adapt an existing disclosure decision making intervention for the use with people living with dementia (Who to tell, how and when v2.0) – Feasibility Study 1
(3) conduct feasibility testing and preliminary evaluation of the intervention– Feasibility Study 2REC name
West Midlands - Solihull Research Ethics Committee
REC reference
18/WM/0169
Date of REC Opinion
27 Jun 2018
REC opinion
Unfavourable Opinion