"Who to tell, how and when?" Version 1.1

  • Research type

    Research Study

  • Full title

    “Who to tell, how and when?” – A feasibility evaluation of an intervention to help support people living with dementia who are fearful of disclosing their diagnosis to others

  • IRAS ID

    254026

  • Contact name

    Georgina Charlesworth

  • Contact email

    g.charlesworth@ucl.ac.uk

  • Sponsor organisation

    University College London or University College London Hospital Trust

  • Duration of Study in the UK

    2 years, 0 months, 1 days

  • Research summary

    The aim of this study is to evaluate the feasibility of the “who to tell, how and when?” intervention through the views and experiences of participants who have been invited to attend, through both quantitative and qualitative research methods. The intervention is designed to support people living with dementia and their chosen supporter who are fearful of disclosing a diagnosis of dementia to others. Therefore exploring, who to tell, how and when about a diagnosis of dementia over a three session psychosocial, group based intervention.

  • REC name

    London - Surrey Borders Research Ethics Committee

  • REC reference

    19/LO/1163

  • Date of REC Opinion

    28 Aug 2019

  • REC opinion

    Further Information Favourable Opinion