What do PPI stakeholders consider the most important outcomes of PPI?
Research type
Research Study
Full title
What do Patient and Public Involvement (PPI) stakeholders consider as the most important outcomes of PPI for health research?
IRAS ID
265086
Contact name
Carmel McGrath
Contact email
Sponsor organisation
University of Southampton NHS Foundation Trust
Duration of Study in the UK
1 years, 6 months, 1 days
Research summary
Patient and Public involvement (PPI) is a term that is used to describe research carried out in partnership with people affected by the research.
PPI is becoming increasingly popular within the field of research and research funders such as the National Institute for Health Research (NIHR) recommend its use throughout the whole research process for best practice.
There are a number of studies that report how PPI contributors had been involved in many different ways throughout research projects. However, evidence about the difference and impact PPI had made to their research is an area that requires more information. Knowing the impacts of PPI is important. It can be used as a way for researchers to better understand how they can work with PPI contributors, identify how improvements to their research had been made as a result of PPI, as well as recognising areas for improvement.
This study will ask people who have a shared interest in PPI, what outcomes of PPI are important for us to show the difference PPI makes for health research. This information will be used to help further research that will aim to develop a tool to help researchers assess, identify and report impacts of PPI.
The study will interview PPI contributors, PPI researchers, clinical researchers, and PPI influencers to make sure that a wide range of people with different experiences of PPI are included and can contribute to the overall decision about what is considered as a most important outcome.
The main site for interviews will be Southampton General Hospital NHS Foundation Trust, if there are issues in travelling to the main site, there will be flexibility for the researcher to travel to a location of the participant’s choice.
There will be one interview that will last approximately 30 – 45 minutes and will be semi- structured, meaning the researcher will ask a few questions that will provide the individual with an opportunity to respond on their own terms and raise issues that are felt relevant to their experiences.REC name
North West - Greater Manchester East Research Ethics Committee
REC reference
19/NW/0493
Date of REC Opinion
30 Aug 2019
REC opinion
Further Information Favourable Opinion