What do people using CLDT think about their diagnosis of PD? Version 1
Research type
Research Study
Full title
What do people using community learning disability teams think about their diagnosis of ‘personality disorder’?
IRAS ID
250921
Contact name
James Taylor
Contact email
Sponsor organisation
Lancaster University
Duration of Study in the UK
0 years, 7 months, 31 days
Research summary
This research aims to find out what people who are using Community Learning Disability Teams think about their diagnosis of personality disorder. Personality disorder is a contentious diagnosis, with debates over the validity of its construction, clinical usefulness and potential stigmatising effects on both individuals and the services who work with diagnosed clients. Historically, people living with a learning disability have been marginalised and continue to face societal challenges. Despite calls for greater service user inclusion, along with the acknowledgement that people with a learning disability are at increased risk of developing mental health difficulties, there is little research conducted with service users themselves. With the Transforming Care agenda highlighting a need for service users to be supported more effectively within the community, there will be an increase in people with both a learning disability and diagnosis of personality disorder living with community settings and accessing services. The research will explore with service users what their experience is of having this diagnosis in relation to their needs, thoughts, feelings, relationships and support/services. Those who are eligible to participate are current service users of community learning disability teams, who have received and are aware of a diagnosis of 'personality disorder'. They will need capacity to understand and retain the purpose of the study, and be able to consent to engage.
The research aims to conduct between four and ten 1:1 interviews, lasting approximately one hour each with current service users with a diagnosis of both learning disability and personality disorder. Participant may be invited to a follow up session in order to discuss emerging results. Participants will be recruited from four different teams across two separate NHS Trusts.
REC name
North West - Liverpool Central Research Ethics Committee
REC reference
18/NW/0787
Date of REC Opinion
31 Jan 2019
REC opinion
Further Information Favourable Opinion