West Midlands Regional Children's Tumour Registry
Research type
Research Database
IRAS ID
177334
Contact name
Helen Curry
Contact email
Research summary
West Midlands Regional Children's Tumour Registry
REC name
East Midlands - Derby Research Ethics Committee
REC reference
15/EM/0396
Date of REC Opinion
18 Sep 2015
REC opinion
Unfavourable Opinion
Data collection arrangements
Data on the diagnosis, treatment and outcomes of children with cancer (or benign CNS tumours) in the West Midlands region are collected and stored securely on the West Midlands Regional Children's Tumour Registry databases held on the Birmingham Children's Hospital network servers. An historical pathological sample archive is also kept. Data are processed by Registry staff who are fully trained in Information Governance matters and access is limited to a small number of authorised users of the data. Data are only released to researchers with legitimate rights of access and who comply with the Registry's data release policy.
Research programme
Research, both instigated and supported by the West Midlands Regional Children's Tumour Registry over the past 30 years, has contributed to a wider understanding of childhood cancer within the West Midlands region (and continues to do so). Understanding incidence rates and trends together with the health and outcomes of survivors of childhood cancer has helped to develop the clinical service within Birmingham Children's Hospital, the principal treatment centre for children with cancer in the West Midlands region.
Research database title
West Midlands Regional Children's Tumour Registry
Establishment organisation
Birmingham Children's Hospital NHS Foundation Trust
Establishment organisation address
Steelhouse Lane
Birmingham
West Midlands
B4 6NH