Web-based tool to support treatment choices in advanced cancer
Research type
Research Study
Full title
Shared decision-making: Investigating the potential of an interactive, web-based information tool to support treatment choice for people with advanced pancreatic cancer
IRAS ID
237772
Contact name
Janet Scammell
Contact email
Sponsor organisation
Bournemouth University
Duration of Study in the UK
2 years, 4 months, 31 days
Research summary
After diagnosis with advanced pancreatic cancer, patients are left with the option of palliative care since curative surgical procedures are no longer an option at this stage. Systemic chemotherapy and enhanced care (best supportive care) are some of the palliative care options available to candidates. However, these options come with different side-effects that might be unclear to the patients. On the one hand, clinicians need tools for effective communication with their patients about the treatment options available, and on the other hand, patients need to understand the potential benefits and risks associated with the treatments being administered to them, thereby potentially assisting them in the decision-making process about their treatment based on their preferences.
The purpose of the research is to assess the usefulness of a web-based information tool for clinicians, patients and their relatives to have discussions about available treatment options after diagnosis with the disease.
Eligible participants are clinicians (doctors and clinical nurse specialists) who are involved with providing care for people with advanced cancer, people who have been diagnosed with advanced pancreatic cancer, and their nominated relatives who are supporting them during the period of treatment.
Potential participants will be enrolled from NHS Foundation Trust sites in England and from Pancreatic Cancer UK.
There will be single interview sessions for patients, relatives, and doctors, and there will be focus groups for specialist nurses. Thereafter, participants will be invited to test the new online information tool that will be developed.
Recruitment will be in two stages. First stage will be for those who will participate in interviews, focus groups and stage 1 test of the online information tool (May 2018-May 2019).
Second stage of recruitment will be for those who will be involved in the stage 2 test of the online information tool (July-October 2019).REC name
Yorkshire & The Humber - South Yorkshire Research Ethics Committee
REC reference
18/YH/0290
Date of REC Opinion
8 Aug 2018
REC opinion
Unfavourable Opinion