VWD 360: The Lived Experience of People with von Willebrand Disease
Duration of Study in the UK
1 years, 0 months, 31 days
von Willebrand disease (vWD) is reported to be the most common bleeding disorder, with prevalence estimated at 1% of the general population. Despite this, little is known about its natural history, or of the impact it has on affected individuals.
The Haemnet vWD.360 programme is a mixed-methods, natural history study designed to better understand vWD and its impact on individuals. It comprises both qualitative and quantitative approaches and is designed to include the perspectives of individuals with a diagnosis of any subtype of vWD
The vWD.360 study includes three components:
- A survey
- A single one-to-one interview
- A 30-day symptom diary.
London - Brighton & Sussex Research Ethics Committee
Date of REC Opinion
27 Oct 2023
Further Information Favourable Opinion