vWD 360

  • Research type

    Research Study

  • Full title

    VWD 360: The Lived Experience of People with von Willebrand Disease



  • Contact name

    Simon Fletcher

  • Contact email


  • Sponsor organisation

    Haemnet Ltd

  • Duration of Study in the UK

    1 years, 0 months, 31 days

  • Research summary

    von Willebrand disease (vWD) is reported to be the most common bleeding disorder, with prevalence estimated at 1% of the general population. Despite this, little is known about its natural history, or of the impact it has on affected individuals.

    The Haemnet vWD.360 programme is a mixed-methods, natural history study designed to better understand vWD and its impact on individuals. It comprises both qualitative and quantitative approaches and is designed to include the perspectives of individuals with a diagnosis of any subtype of vWD

    The vWD.360 study includes three components:
    - A survey
    - A single one-to-one interview
    - A 30-day symptom diary.

  • REC name

    London - Brighton & Sussex Research Ethics Committee

  • REC reference


  • Date of REC Opinion

    27 Oct 2023

  • REC opinion

    Further Information Favourable Opinion