VisualBeats
Research type
Research Study
Full title
VisualBeats. Piloting patient-centred curating as a complementary way of researching the experience of a music making programme for young adults hospitalised with cancer
IRAS ID
269754
Contact name
T Wiseman
Contact email
Sponsor organisation
The Royal Marsden NHS Foundation Trust
Clinicaltrials.gov Identifier
Grant 6919 B9S2, National Foundation For Youth Music
Duration of Study in the UK
1 years, 1 months, 28 days
Research summary
Funded by charitable bodies and led by the Royal Marsden’s Arts Officer this one-year pilot study, embedded within a larger programme of research, will study how curatorial methods further understanding of the music-making experience for young adults hospitalised with cancer. It proposes that this understanding can be enhanced by exploring and communicating their individual and collective music-making activities through effective public exhibitions co-created by the participants themselves. Aimed at revealing the mechanisms involved in the wider programme of arts participation, this project will include seven co-design groups of 2-6 participants, the exhibitions, and their evaluation. Any impact on the participants and stakeholders will be explored qualitatively, with the findings and feasibility of this approach assessed through peer-reviewed publications that together satisfy the requirements of PhD in Health Sciences at the University of Southampton.
Lay summary of study results: Seven young adults with cancer were recruited to participate in a series of facilitated curating workshops that lead to a temporary exhibition within the cancer hospital, whose audience then responded to it. Explored as an adapted autoethnographical account, processes and experiences of the co-curating, and the hospital audience’s response to it, were considered and analysed in relation to a concept of caring. The co-curatorial processes were themed as promoting connectivity and communality. The co-curating experiences were themed as providing a sense of autonomous, creative collaboration.
REC name
Yorkshire & The Humber - Leeds West Research Ethics Committee
REC reference
19/YH/0446
Date of REC Opinion
23 Dec 2019
REC opinion
Favourable Opinion