Views and experiences towards testicular cancer prosthesis
Research type
Research Study
Full title
Testicular cancer prosthesis: understanding current practices of healthcare professionals and patients’ experiences and views
IRAS ID
272477
Contact name
Lauren Matheson
Contact email
Sponsor organisation
Oxford Brookes University
Duration of Study in the UK
1 years, 5 months, 30 days
Research summary
Around 2,300 UK men are diagnosed with testicular cancer each year. All men will receive an orchidectomy (testicle removal), and approximately a quarter will opt for a prosthesis for reasons including concerns over body image and appearance or concerns over future intimate relationships. However, little is known about health care professionals’ practices and views in terms of how and at what point a prosthesis is discussed with patients. Anecdotal evidence suggests that the practice may vary according to, in part at least, the beliefs of health professionals. Men’s views have also received relatively little attention, particularly regarding their views on support and information surrounding prosthesis and body image generally. There is also some evidence that men require more information on prosthesis. However, more up-to-date UK studies are needed. This study aims to explore men’s views and experiences alongside those of UK health professionals in terms of current practices regarding testicular cancer prosthesis. The study will involve an online survey (via Qualtrics) of approximately 120 surgeons, oncologists and nurses who would normally discuss prostheses with patients. A survey (postal or online Qualtrics option) will be sent to approximately 500 testicular cancer patients in the Thames Valley, including those who have a prosthesis and those without. The survey will assess quality of life after testicular cancer including impact on sexual relationships, body image, satisfaction with prosthesis (where relevant) and information needs. Survey data will be de-identified. A proportion of men will be invited to participate in a telephone interview (n=35). A sample of health professionals (n=15) who normally discuss prosthesis with men will also be interviewed about their views and experiences. Findings will inform how best to support men in the future, including ways of helping men decide whether or not to have a prosthesis, such as a decision aid.
REC name
North West - Liverpool Central Research Ethics Committee
REC reference
20/NW/0085
Date of REC Opinion
20 Feb 2020
REC opinion
Favourable Opinion