Version 1: Health risk behaviours in young adults with CHD
Research type
Research Study
Full title
The association between illness perceptions, resilience, and health risk behaviours in young adults with Congenital Heart Disease (CHD).
IRAS ID
141574
Contact name
Louise Johnson
Contact email
Sponsor organisation
University of Leeds
Research summary
There is existing literature to suggest that there is an association between types of beliefs that individuals hold about their illness (known as ’illness perceptions’) and the health behaviour of individuals with chronic illnesses (Ross, Walker, & MacLeod, 2004). In addition, individual ’resilience’ has been associated with risk behaviours. Studies suggest that resilient individuals tend to engage in adaptive behaviour, including areas of health (Wagnild & Young, 1993).
This study is designed to investigate whether illness perceptions and/or resilience are associated with health risk behaviours in young adults with Congenital Heart Disease (CHD). There is little research on this topic. The aim is to explore the association between illness perceptions, resilience and health risk behaviours in young adults with CHD. It is hoped that this study will provide better understanding about the health risk behaviours of young adults with CHD and be able to provide recommendations to services around supporting young people with CHD.
The study design is a cross-sectional questionnaire consisting of three validated questionnaires and one demographic questionnaire. This will be an online survey using Bristol Online Survey software. A sample of young adults aged 16-24 years with CHD will be asked to complete four questionnaires on one occasion. The sample will be recruited from a number of NHS Congenital Heart Services in England. Participating services will identify potential participants who meet the criteria for the study through their clinical database or as participants are seen in clinics. Clinicians from each service will either post or hand out information packs which contain an invitation letter and participant information sheet which includes the online link to the survey. All responses will remain anonymous and no patient identifiable information will be collected.
REC name
North West - Preston Research Ethics Committee
REC reference
13/NW/0883
Date of REC Opinion
23 Dec 2013
REC opinion
Favourable Opinion