VCRC EGPA

• Research type

  Research Study

• Full title

  Longitudinal Protocol for Eosinophilic Granulomatosis with Polyangiitis

• IRAS ID

  348260

• Contact name

  David Jackson

• Contact email

  david.jackson@gstt.nhs.uk

• Sponsor organisation

  University of Pennsylvania, Vasculitis Clinical Research Consortium

• Duration of Study in the UK

  4 years, 0 months, 28 days

• Research summary

  "Longitudinal Protocol for Eosinophilic Granulomatosis with Polyangiitis" is a prospective observational study of a cohort of patients with EGPA to facilitate future studies of the natural history, optimal treatments, pathophysiology, and outcomes in this group of diseases.

  The primary objective of this observational study is to develop a longitudinal cohort to systematically study the natural history, optimal treatments, pathophysiology, and outcomes in EGPA. This will provide a resource of clinical data with linked biospecimens for future studies.

• REC name

  Yorkshire & The Humber - Bradford Leeds Research Ethics Committee

• REC reference

  24/YH/0273

• Date of REC Opinion

  20 Dec 2024

• REC opinion

  Unfavourable Opinion