Validation of the Serious Illness Care Program Questions

• Research type

  Research Study

• Full title

  Serious Illness Care Programme UK: Assessing the ‘face validity’, applicability and relevance of the Serious Illness Conversation Guide (SICG) for use within the UK health care setting.

• IRAS ID

  200435

• Contact name

  Alison Coackley

• Contact email

  alison.coackley@clatterbridgecc@nhs.uk

• Sponsor organisation

  The Clatterbridge Cancer Centre NHS Foundation Trust

• Duration of Study in the UK

  0 years, 5 months, 31 days

• Research summary

  The primary aim of this project will be to assess the applicability and relevance of the Serious Illness Conversation Guide (SICG) for use within the UK health care setting.

  The SICG is a seven item tool which prompts clinicians to address important issues with patients such as; understanding of their illness, prognosis, family involvement, care delivery and expectations of future care including care at the end of life; following recent testing in the US, an eighth item is to be added to the tool to prompt for spiritual needs and expectations. This SICG has been developed to improve communication between clinicians and adult patients with a life limiting illness, and who are deemed to be in the last year of life, specifically to ensure care provided is more ‘person centred’.

  The specific objectives of this study are to:
  1. Use Cognitive Interview Technique to assess the ‘usability’ of the SICG with patient and public ‘lay’ representatives
  2. Understand how respondents perceive and interpret the questions in the SICG
  3. Identify potential issues with the SICG, such as; appropriateness of the format, language, question wording

• REC name

  Wales REC 5

• REC reference

  16/WA/0062

• Date of REC Opinion

  19 Feb 2016

• REC opinion

  Favourable Opinion