v0.2 Fitting of artificial eyes in children with retinoblastoma
Research type
Research Study
Full title
A phenomenological study of the lived experience of parents of, and the children whom wear artificial eyes as a result of retinoblastoma.
IRAS ID
211910
Contact name
Holly Chinnery
Contact email
Sponsor organisation
Bournemouth University
Duration of Study in the UK
1 years, 0 months, 14 days
Research summary
With academic literature predominately focusing on the impact of retinoblastoma, there is a gap at the secondary level (after-care) of the disease: in this instance the impact of the fitting process of artificial eyes. It is therefore important that we seek to understand something more of the lived experience of having an artificial eye fitted. With psycho-oncology literature highlighting the after effects of a disease as being just as distressing for the parents as well as the patient, it is important to understand this process from their perspective. This is particularly important in cases of retinoblastoma due to early onset whereby the parents act as the decision makers of their child's health. This led to the aim of understanding the lived experience of the fitting process of artificial eyes from the parents of and the child patient perspective. By understanding the process from a lived experience perspective, suggestions may be made to ways it can be improved, thus enhancing wellbeing and moving the process forward in terms of design and fitting.
Approximately six to eight participants will undergo a Interpretative Phenomenological Approach (IPA) in-depth interview. Participants will either be parents of, or children diagnosed with retinoblastoma. Participants in the latter group will be aged 13 years plus. Access to the sample will be gained from the retinoblastoma outpatient clinic at Birmingham Children’s Hospital. It is envisioned that each interview will last approximately 45 minutes.
REC name
South Central - Berkshire Research Ethics Committee
REC reference
16/SC/0588
Date of REC Opinion
17 Jan 2017
REC opinion
Further Information Favourable Opinion