Using GENIE to support people to incorporate an insulin pump
Research type
Research Study
Full title
Using a social networking tool (GENIE) to support people to incorporate an insulin pump into their everyday lives
IRAS ID
213320
Contact name
Claire Reidy
Contact email
Sponsor organisation
University of Southampton
Clinicaltrials.gov Identifier
29736, University of Southampton Ethical approval - Using a social networking tool (GENIE) to support people to incorporate an insulin pump into their everyday lives
Duration of Study in the UK
0 years, 8 months, 1 days
Research summary
“Self-management” can be defined as that which supports people with a long-term condition to have the skills, knowledge and expertise to manage their condition, and has been shown to be effective in preventing complications and the need to go into hospital as well as making a significant contribution to health outcomes and quality of life. Insulin pumps represent technical progress for people with diabetes to deliver insulin, however, they are also considered more technically advanced and require the user to carry them constantly. These new complexities can have an impact on how a person is able to self-manage. Understanding the impact of these complexities and findings ways to support patients to overcome these complexities could provide a model for people with long-term-conditions to incorporate new technologies.
Social involvement with a wider variety of people and groups is known to support self-management, as well as physical and mental well-being. Network support substitutes for formal health care (such as the NHS) and can produce substantial savings in traditional health service utilization costs; where costs can be significantly reduced for patients receiving greater levels of illness support through their networks.
With this in mind, we wish to implement a tool named GENIE (which has been tested with other patient groups). GENIE is an online tool which visually maps the support network of the individual and then facilitates personalised access to support and resources in the locality of the participant. However, in order to implement GENIE we need to consider the barriers and facilitators involved in implementing a tool into practice. We, therefore, wish to speak to health care professionals working in insulin pump clinics to see how GENIE may fit within their service before implementing the tool with new pump users, and following them for a period of 6 months.REC name
North of Scotland Research Ethics Committee 1
REC reference
17/NS/0089
Date of REC Opinion
12 Sep 2017
REC opinion
Favourable Opinion