Urdu/Hindi Cultural Adaptation of the ACE-III
Research type
Research Study
Full title
Cultural Adaptation of the Addenbrooke’s Cognitive Examination III (ACE-III) in Urdu/Hindi
IRAS ID
176957
Contact name
Angela Ross
Contact email
Sponsor organisation
Bradford District Care NHS Foundation Trust
Duration of Study in the UK
0 years, 7 months, 31 days
Research summary
Dementia is a condition affecting thinking and everyday living skills. Improving dementia detection is a national priority as timely diagnosis enables patient access to support, treatment, and involvement in decisions on care. Ethnic minority older people are underrepresented in dementia services and seek help at later stages for several reasons including the lack of culturally appropriate diagnostic tests. Approximately one-fifth of UK South Asians, the country’s largest ethnic minority, do not speak English and the absence of a reliable test makes under- and misdiagnosis a particular problem for this group.
The Addenbrooke’s Cognitive Examination-III (ACE-III) is used globally in dementia diagnosis. Preliminary research with Bradford District Care NHS Foundation Trust (BDCFT) patients and staff indicates it is suitable for cultural adaptation for South Asians, and this eight-month study asks if it can be formally adapted and translated using the process described in research literature.
The study has three stages. First, issues to consider in translating the ACE-III will be identified through interviews with Urdu/Hindi-speaking professionals routinely assessing problems in thinking and memory function in South Asian patients, and through focus groups with South Asian members of the public. Second, using this information, the ACE-III will be culturally adapted and translated using a four-step standard process. Finally, the adapted tool will be tested for use in the BDCFT clinical setting. Research participants in all stages will be recruited through professional networks of mental health trusts in Yorkshire and the West Midlands, and from local memory clinics and organisations supporting people with dementia.
This research will produce a culturally adapted Urdu/Hindi ACE-III and a report on the translation process with methodological lessons learned for future research with other minority groups. Based on the results of this work, further research will be proposed on the accuracy and suitability of the Urdu/Hindi ACE-III.
REC name
West of Scotland REC 4
REC reference
15/WS/0162
Date of REC Opinion
14 Aug 2015
REC opinion
Favourable Opinion