UNICORNS: Uveitis in childhood

  • Research type

    Research Study

  • Full title

    UNICORNS: Uveitis in childhood prospective national cohort study

  • IRAS ID

    258638

  • Contact name

    Ameenat Lola Solebo

  • Contact email

    a.solebo@ucl.ac.uk

  • Sponsor organisation

    UCL ICH GOS / GOSH joint R&D office

  • Duration of Study in the UK

    4 years, 0 months, 30 days

  • Research summary

    Childhood uveitis (inflammation inside the eye) is an uncommon disorder which carries the risk of blindness. Inadequate treatment of active inflammation has been shown to be related to poor outcome. There has been no population based, prospective longitudinal study of all cause childhood uveitis, with resultant limitations in the evidence base used to counsel affected families, balance treatment decisions, or plan further research. The aim of our proposed study is to describe the characteristics of childhood onset uveitis (onset when aged under 18 years) and describe outcomes. We shall also aim to identify the socio-demographic, clinical, biological and treatment related determinants of outcome. Early (1-2 years following diagnosis) outcomes will be described in the first instance: however, through the creation of a national inception cohort, we shall enable longer term studies of outcome for affected children and families. There will be no change to routine clinical care.

  • REC name

    London - Bloomsbury Research Ethics Committee

  • REC reference

    20/LO/0661

  • Date of REC Opinion

    1 Jul 2020

  • REC opinion

    Further Information Favourable Opinion