Understanding the Narratives of Alcohol Related Liver Disease

• Research type

  Research Study

• Full title

  Understanding the Narratives of Alcohol Related Liver Disease

• IRAS ID

  172073

• Contact name

  L Styles

• Contact email

  las2g08@soton.ac.uk

• Clinicaltrials.gov Identifier

  12273, University of Southampton- Ethics and Research Goverance (ERGO)

• Duration of Study in the UK

  0 years, 9 months, 1 days

• Research summary

  This proposed research aims to;
  1. Understand the narratives of alcohol related liver disease (ARLD) from the perspective of the individual with ARLD
  2. Understand the narratives of ARLD from the perspective of the family and/or friends of those with ARLD
  The proposed study will consist of two parts.
  • Part 1: In-depth interviews with participants with ARLD, aiming to explore the narratives of people with ARLD
  •Part 2: In-depth interview with the family and friends of people with ARLD, aiming to explore their narratives

  The’ family and/or friends’ in part 2 will be recruited through the part 1 participants. Each narrative will be considered complete data in its own right and the purpose is not to verify any narrative but recruiting part 2 participants from part 1 participants allows for potentially interesting comparisons to be made between the different groups. The participants of part 1, due to their medical condition will be patients under the care of a consultant hepatologist within Portsmouth Hospitals Trust (PHT). The participants of part 2 will be the family and/or friends of the participants in part 1.

  Given the literature review producing rich, deep data of patient experiences in liver transplantation, the proposed data collection is in-depth interviews. The interview guide consists of an open-ended probing question that explores the participant’s narrative in relation to their experience of ARLD. The main question in the interview will be:
  • Part 1 - ‘could you tell me about your life with liver disease?’
  • Part 2 - ‘could you tell me about your life with your family / friends (insert name if known and appropriate) liver disease?’

  At the end of the interview the participant will be asked if they consent to giving some socio-demographic information. If they agree the researcher will ask set questions verbally post interview

• REC name

  South Central - Hampshire B Research Ethics Committee

• REC reference

  15/SC/0173

• Date of REC Opinion

  9 Jun 2015

• REC opinion

  Further Information Favourable Opinion