Understanding symptom burden in patients with bronchiectasis
Research type
Research Study
Full title
Understanding symptom burden and impact in patients with bronchiectasis
IRAS ID
200364
Contact name
James D Chalmers
Contact email
Sponsor organisation
Tayside Medical Sciences Centre
Duration of Study in the UK
0 years, 10 months, 10 days
Research summary
Bronchiectasis is a chronic lung disease characterised by cough, sputum production and frequent chest infections. Patients have substantial impairment of quality of life. It has been a historically neglected disease and so there have no specific tools to measure quality of life or symptoms in bronchiectasis. As a result, most trials of new treatments use tools originally developed for COPD/Asthma/Chronic cough, which may not reflect what patients with bronchiectasis actually feel. If we cannot accurately measure symptoms, we can't accurately measure whether new treatments will work.
This study will involve interviews with a range of people with bronchiectasis to explore their daily symptoms, impacts on their daily life and how well existing questionnaires reflect their burden of disease. This information will be used to guide future development of symptom tools.REC name
North West - Greater Manchester West Research Ethics Committee
REC reference
16/NW/0100
Date of REC Opinion
5 Feb 2016
REC opinion
Favourable Opinion