Understanding pain in people with breast cancer

  • Research type

    Research Study

  • Full title

    Understanding pain in people with breast cancer

  • IRAS ID

    128206

  • Contact name

    Stephanie Andrews

  • Contact email

    umshan@leeds.ac.uk

  • Research summary

    Rationale
    Pain is experienced by the majority of breast cancer patients and can have a large negative impact on quality of life. Pain is associated with reduced activity levels, increased medication and increased hospital visits. Multiple pains are common, and while some are due to the cancer itself, others are due to the treatment. These pains can potentially be treated if the patient tells their doctor about them. Mood disorders such as anxiety and depression are a commonly found in people with chronic pain, including cancer patients. Other conditions found alongside chronic pain include fatigue and problems with sleep, which can make pain feel worse. It is important to consider the role of pain prediction in a clinical setting when cancer patients attend medical appointments. In addition to past experience of pain influencing doctor-patient interactions and subsequent pain treatment, predictions of future experiences also have an important role. Pain prediction is affected by a number of factors such as personal characteristics, mental health, anxiety and fear, optimism and pessimism, past pain experience, current pain and how the individual understands their pain.

    Aims
    This research aims to determine the most appropriate way to schedule the monitoring of pain in breast cancer patients, including recording pain predictions. The monitoring must be accurate, timely, relevant and not too burdensome. Additionally the monitoring must gather information which could potentially be shared with healthcare professionals and will assist them to manage the pain as effectively as possible.

    Method
    Two different schedules of monitoring will be compared. Participants will either complete pain and prediction measures when they experience a pain event OR at specified times twice each day. All data will be collected online via Q-tool, a secure website tool purpose-built to enable generation of online surveys. Following the online collection phase, participants will take part in a short interview.

  • REC name

    Yorkshire & The Humber - Leeds East Research Ethics Committee

  • REC reference

    13/YH/0288

  • Date of REC Opinion

    18 Oct 2013

  • REC opinion

    Further Information Favourable Opinion