Understanding access to SPC in haematological cancer.
Research type
Research Study
Full title
Understanding preferences and perceptions of supportive care for people with haematological cancer: A pilot study.
IRAS ID
199824
Contact name
Brooke Swash
Contact email
Sponsor organisation
University of Chester
Duration of Study in the UK
1 years, 0 months, 1 days
Research summary
Receiving a diagnosis of cancer and all that comes after this is often a very distressing time. Providing appropriate care and support across the cancer experience can help to make sure that people’s needs are met, and that they feel supported.
Haematological cancers are common in the UK. As a group of diseases, they sit apart from solid tumours in many ways: clinical presentation; prognosis; and the setting and manner in which they are treated. Most notably, treatments for haematological malignancies are intensive and impact upon psychological, social and physical well-being. This patient group experiences high levels of distress and unmet psychosocial needs. Yet, despite the prevalence of both in this patient group, haematological cancer patients are less likely than other cancer patients to access supportive and palliative care services.
It is unclear whether the discrepancy in service access translates into unmet care needs for patients. More research is needed to better understand what care options are currently being offered to haematological cancer patients, and whether this is meeting clinical and psychosocial needs.
We are aiming to conduct interviews with people who have a diagnosis of a haematological cancer and the people who are close to them to find out more about what sort of support and care people would like to receive.
REC name
North West - Greater Manchester West Research Ethics Committee
REC reference
16/NW/0441
Date of REC Opinion
22 Jun 2016
REC opinion
Further Information Favourable Opinion