UKHR (2024 Renewal)

• Research type

  Research Tissue Bank

• IRAS ID

  341489

• Research summary

  UK Histiocytosis Registry

• REC name

  North East - Newcastle & North Tyneside 2 Research Ethics Committee

• REC reference

  24/NE/0093

• Date of REC Opinion

  14 Oct 2024

• REC opinion

  Favourable Opinion

• Data collection arrangements

  UKHR will obtain samples of blood and fresh frozen biopsies will be stored in the research tissue bank. In addition, preserved tissues may be retrieved from NHS pathology labs and registered to UKHR for use in research. Anonymous clinical data will be taken from medical records. Consent will be given in writing on paper or online.

• Research programme

  A major programming of research is underway supported by the MRC Rare Disease Platform 'HistioNode'. In addition, scientists and doctors in the UK may apply for access for the work funded by Wellcome Trust, CRUK, Blood Cancer UK, Histio UK and other research organisations.

• Storage license

  12534

• RTBTitle

  UK Histiocytosis Registry

• Establishment organisation

  Newcastle University

• Establishment organisation address

  Translational and Clinical Research Institute

  Faculty of Medical Sciences

  Framlington Place

  NE2 4HH