UKHR

  • Research type

    Research Tissue Bank

  • IRAS ID

    238319

  • Research summary

    UK Histiocytosis Registry

  • REC name

    North East - Newcastle & North Tyneside 2 Research Ethics Committee

  • REC reference

    18/NE/0374

  • Date of REC Opinion

    24 Apr 2019

  • REC opinion

    Further Information Favourable Opinion

  • Data collection arrangements

    Samples:
    Blood, and frozen biopsy (stored fresh)
    FFPE material retrieved from NHS pathology lab archives will be registered to the Research Tissue Bank for use in specific projects but will not be physically stored in the Tissue Bank

    Data:
    Link-anonymised detailed clinical record

    Consent:
    Written consent including permission for future research approved by the Access Committee of the UKHR

  • Research programme

    Programmes of research supported by the charity Histiocytosis UK

  • Storage license

    12534

  • RTBTitle

    UK Histiocytosis Registry

  • Establishment organisation

    Newcastle University

  • Establishment organisation address

    Institute of Cellular Medicine

    Framlington Place

    Newcastle upon Tyne

    NE2 4HH