UK Primary Sjogren's Syndrome Registry

• Research type

  Research Tissue Bank

• IRAS ID

  342471

• Research summary

  United Kingdom Primary Sjogren's Syndrome Registry
  

• REC name

  North West - Haydock Research Ethics Committee

• REC reference

  24/NW/0147

• Date of REC Opinion

  20 May 2024

• REC opinion

  Favourable Opinion

• Data collection arrangements

  Samples and data will both be link-anonymised and stored at Newcastle University. Written consent will be stored at the local clinical centres to prevent patient identification.
  

• Research programme

  The biobank is funded and supported by the British Sjogren's Syndrome Association as well as local PSS patient support groups.

• Storage license

  12534

• RTBTitle

  United Kingdom Primary Sjogren's Syndrome Registry

• Establishment organisation

  Newcastle University

• Establishment organisation address

  Newcastle University

  Newcastle city

  NE24HH