UK IBD Twin Database

• Research type

  Research Database

• IRAS ID

  234971

• Contact name

  Mark Thursz

• Contact email

  m.thursz@imperial.ac.uk

• Research summary

  UK IBD Twin Database

• REC name

  South Central - Oxford C Research Ethics Committee

• REC reference

  17/SC/0617

• Date of REC Opinion

  30 Nov 2017

• REC opinion

  Favourable Opinion

• Data collection arrangements

  The following information is collected from data subjects:
  • Name
  • DOB
  • Address
  • Telephone number
  • Email
  • GP details
  • Current Hospital Specialist
  • Diagnosis
  • Previous medical history

• Research programme

  Validated researchers will be given limited access to summary data held within the IBD Twins Database. This will continue to facilitate collaborative research projects based around aetiology and treatment outcomes in patients with inflammatory bowel disease.

• Research database title

  UK IBD Twin Database

• Establishment organisation

  Imperial College London

• Establishment organisation address

  Joint Research Compliance Office, Imperial College London, Room 221, Medical School Building

  London

  W2 1PG