UK FSHD Patient Registry

• Research type

  Research Database

• IRAS ID

  250099

• Contact name

  Chiara Marini-Bettolo

• Contact email

  Chiara.Marini-Bettolo@ncl.ac.uk

• Research summary

  UK FSHD Patient Registry

• REC name

  North East - Newcastle & North Tyneside 1 Research Ethics Committee

• REC reference

  18/NE/0288

• Date of REC Opinion

  25 Feb 2019

• REC opinion

  Further Information Favourable Opinion

• Research database title

  UK FSHD Patient Registry

• Establishment organisation

  Newcastle University

• Establishment organisation address

  Framlington Place

  Newcastle upon Tyne

  NE7 1RU