Transition in young people with neurological conditions 1
Research type
Research Study
Full title
What do young adults with neurological conditions moving into adulthood want from Leeds community neurological rehabilitation service? Are we meeting their needs?
IRAS ID
160410
Contact name
Amy McCulloch
Contact email
Sponsor organisation
University of Leeds
Clinicaltrials.gov Identifier
200448567, Student Number
Duration of Study in the UK
1 years, 0 months, 1 days
Research summary
With the introduction of The Children and Families Act in spring 2014, transition services for young adults with disabilities are set to include a more joined up approach between health, education and social care services. The Act also sets out a more personalised approach to services with more information and better opportunities for young adults with disabilities and their families to be involved in designing services.
Now is the perfect time to find out what it is that young adults and their parents want from transition services and what they want to change about current services. Transition into adulthood is a hugely important stage in a young person's life but can be extremely distressing if families are not supported adequately. We therefore need to find out what families want from transition services in order to offer them the support they need.
For this study we will talk to young adults who have a neurological condition and who access the community neurological rehabilitation service in Leeds. We hope to find out how young adults and their parents feel about the services they are currently accessing and what further support they feel that they would benefit from. This information can then inform the team who provide the service and hopefully help in making any improvements that would benefit the young people and their parents.
This is a small study with a qualitative design. It will comprise of 6-10 semi-structured interviews with young adults with neurological conditions and 6-10 semi-structured interviews with parents of young adults with neurological conditions. The study will be completed within 18 months.
REC name
East of England - Cambridgeshire and Hertfordshire Research Ethics Committee
REC reference
14/EE/1283
Date of REC Opinion
19 Jan 2015
REC opinion
Further Information Favourable Opinion