Transition in Type 1 Diabetes
Research type
Research Study
Full title
Service Users’ Perspectives on the Transition from Children to Adult Type 1 Diabetes Mellitus Services within Hull and East Riding of Yorkshire
IRAS ID
244558
Contact name
Thozhukat Sathyapalan
Contact email
Sponsor organisation
Hull and East Yorkshire Hospitals NHS Trust
Duration of Study in the UK
1 years, 0 months, 0 days
Research summary
Title: Service Users’ Perspectives on the Transition from Children to Adult Type 1 Diabetes Mellitus Services within Hull and East Riding of Yorkshire
Background:
Approximately 10% of people diagnosed with diabetes have Type 1 Diabetes Mellitus (T1DM)an autoimmune disease that destroys the beta cells in the pancreas.Though T1DM can develop at any age, half of people in the UK are diagnosed under the age of 15 with 90% of diagnosis by the age of 30 years. Transition from paediatric to the transition diabetes clinic occurs around the age of 16-19 years. Having T1DM in adolescence generates several risks associated with the management of the disease and with it accelerated development of early complications.Rationale:
Capturing the perceptions of TIDM service users who are making the transition between children and adult services will give further insight into areas for investment, improvement and change which will help young patients engage with their health care needs at this complex stage in life.Potential Benefits
The findings will support relevant parties to further deliver effective, service user driven care within Hull and East Riding of Yorkshire to suit T1DM young service users’ needs in conjunction with delivering national and local standards of care.Study Design:
This study will be undertaken using sequential mixed methods research by combining the use of focus groups and questionnaires. This will enhance the understanding of the barriers to service access, through synthesising findings from different approaches.Recruitment:
Prospective patients and their families/carers will be recruited from the transition and young adult clinics. All participants must be diagnosed with T1DM and reside within Hull or East Yorkshire.Funding:
Funding was awarded partly through Hull CCG Sustainability and transformation funding and Hull District Support group. The funding from Hull District Support group was open for UK researchers and was awarded after peer review.REC name
London - Surrey Borders Research Ethics Committee
REC reference
18/LO/0796
Date of REC Opinion
19 Jun 2018
REC opinion
Further Information Favourable Opinion