Transition in Oesophageal Atresia
Research type
Research Study
Full title
Transition from Children's to Adult Services in Oesophageal Atresia
IRAS ID
193000
Contact name
Abigail R Jones
Contact email
Sponsor organisation
Nottingham University Hospitals Research and Innovation
Duration of Study in the UK
0 years, 4 months, 19 days
Research summary
Oesophageal atresia (OA) is a rare condition where a baby is born without a properly formed oesophagus; there is a gap somewhere between the mouth and stomach. This requires surgical repair shortly after birth. We know that some children with this condition will continue to have health problems related to their OA throughout childhood and into adulthood. Care in childhood is usually provided by a paediatric surgeon, but transition of care to adult services is not yet well established across the country. The danger is that young people with OA will not receive the care and support they need when they are adults.
This study seeks to address this issue by finding out through questionnaires, what transition services young people with OA are receiving, and how they think this can be improved. It will also provide information on what adult services these patients are already accessing. The study will enable the planning of a transition service tailored to patients' needs.
Young people who are members of the TOFS Charity, from around the UK will be contacted with the questionnaire covering the aforementioned domains. Two age groups will be studied - those aged 12-18 years (deemed to be undergoing transition) and those aged 20-26 years (who may have already undergone transition).REC name
London - City & East Research Ethics Committee
REC reference
16/LO/0533
Date of REC Opinion
30 Mar 2016
REC opinion
Further Information Favourable Opinion