Transition from child to adult Type1 Diabetes services V1.0
Research type
Research Study
Full title
What should safe feel like? A mixed method study exploring patient experience of transition from Child to Adult Type 1 Diabetes Services.
IRAS ID
300776
Contact name
Michelle Baybutt
Contact email
Sponsor organisation
University of Central Lancashire
Clinicaltrials.gov Identifier
0000-0002-8198-1036, Student Researcher's Orcid ID
Duration of Study in the UK
3 years, 3 months, 0 days
Research summary
This qualitative mixed-methods study will consider adolescents’ transition experiences from child to adult type 1 diabetes (T1D) services in Greater Manchester (GM), exploring the concept of safe transition using collective case study methodology.
Research aim:
To develop an in-depth understanding of what safe transition means for adolescents with T1D during transition from child to adult diabetes services.
Objectives
Three demographically diverse case clinics in Greater Manchester have been identified to:
· Explore transition experiences of adolescents aged 16-25 with T1D in GM, who have transferred from child to adult services.
· Compare adolescents’ perspectives of safe transition with professionals’ perspectives.
· Explore whether policy and practice reflect adolescents’ needs and perspectives of safe transition.
Transition is a process beginning before and ending after children transfer to adult services (National Institute for Health and Care Excellence, 2016), with transfer from child to adult provision happening within the transition (Department of Health, 2006). Safe transition is prioritised in the National Health Service Long Term Plan (2019). Wider literature reveals guidance supporting transitioning from child to adult services is driven by clinical outcomes and professional expertise, with gaps in guidance informed by patient perspectives (Farrell, Holmes-Walker, & Llewellyn, 2007). From here, ‘adolescent(s)’ is used in reference to children and young people.
The research, conducted over up to five years, will explore factors contributing to safe transition, examining adolescents’ perspectives of their experience, comparing and contrasting with professional perspectives. Triangulation of data gathered using different data collection methods will enable a deeper understanding of what constitutes safe transition from child to adult services (Flick, 2018).
Findings may contribute to future recommendations about service provision and more generally to the evidence base around transition from child to adult services, which will be relevant to inform provision for adolescents with other long term medical conditions.REC name
Wales REC 7
REC reference
23/WA/0061
Date of REC Opinion
28 Feb 2023
REC opinion
Further Information Favourable Opinion