Transition experiences for children with complex palliative needs
Research type
Research Study
Full title
Exploring the experiences of young adults and their carers with complex life-limiting conditions when transitioning from paediatric to adult care.
IRAS ID
367931
Contact name
Katherine Hill
Contact email
Sponsor organisation
Cardiff University
Duration of Study in the UK
0 years, 5 months, 27 days
Research summary
We intend to interview young adults with complex medical needs and their carers about their experiences of transitioning from paediatric to adult care. Particulary children who have limited life expectancy and complicated health needs with lots of doctors.
More children are surviving into adulthood with very complex medical needs. Services are set up differently in paediatric and adult care. We want to understand what goes well and what doesn't go wrong so that this can inform future research and services to make the experience better for future children.REC name
West Midlands - Coventry & Warwickshire Research Ethics Committee
REC reference
26/WM/0039
Date of REC Opinion
10 Mar 2026
REC opinion
Further Information Favourable Opinion