Therapy interventions for developing self-care in children Version 1.5
Research type
Research Study
Full title
Designing therapy interventions for developing self-care in children (0-5 years) with neurodisability
IRAS ID
222419
Contact name
Joanne Marshall
Contact email
Sponsor organisation
Newcastle upon Tyne Hospitals NHS Foundation Trust
Duration of Study in the UK
0 years, 9 months, 26 days
Research summary
Approximately six percent of children in the UK have a disability. Neurodisability is a long-term condition due to impairment of the brain or nervous system that limits function.Due to the level of dependency neurodisabilities place on people and services it is beneficial to consider new interventions that could reduce disability and decrease the level of help and support required.
Being able to participate in everyday activities encourages children with disabilities to develop independence skills, reduce their reliance on services, others and improve their health and later employment prospects.
Our previous work with parents and young people with neurodisabilities has identified self-care as a priority area for developing therapy interventions. Parents and children helped us to develop a menu of interventions which would allow them to choose which skills to target and which therapies to use to achieve goals.
We would like to determine how this menu of interventions should be delivered to parents and their child with a neurodisability to help them develop their care skills. We want to find out if it is user-friendly, has potential to work in clinical practice and be effective on a larger scale.
The people invited to take part will be families of children with a neurodisability, aged 0-5-years. The aim of the study is to explore therapists', parents' and childrens' views on using the menu. Eight families will take part in using the menu followed by a one off, face to face, semi-structured interview. During the interview, observations of the therapist’s interaction with the child and parent will be recorded. The study will test the proof-of-concept, of the menu of interventions approach through using case studies. Interviews will take place over two-months with the study complete by August 2018. The study will be written up for a Master's dissertation and will inform future funding applications.
REC name
South Central - Berkshire B Research Ethics Committee
REC reference
17/SC/0646
Date of REC Opinion
21 Dec 2017
REC opinion
Further Information Favourable Opinion