The Safety and Efficacy of ANAVEX2-73 in Patients with Rett Syndrome

  • Research type

    Research Study

  • Full title

    A Double-Blind, Randomized, Placebo-Controlled, Safety and Efficacy Study of ANAVEX2-73 in Patients with Rett Syndrome

  • IRAS ID

    282560

  • Contact name

    Paramala Santosh

  • Contact email

    paramala.1.santosh@kcl.ac.uk

  • Sponsor organisation

    Anavex Germany GmbH

  • Eudract number

    2019-004321-25

  • Clinicaltrials.gov Identifier

    NCT04304482

  • Duration of Study in the UK

    1 years, 8 months, 13 days

  • Research summary

    This is a multi-national Phase 2 clinical study, involving approx. 84 patients with Rett syndrome (RTT) aged 5 years and above but less than 18 years of age, in which neither the participants nor the researchers know who is receiving a
    particular treatment. Rett syndrome (RTT) is a rare inherited disorder, which affects the development of the nervous system. It has a dynamic and ultimately progressive clinical course.
    Considering the severity and progressive course of neurobehavioral impairments in RTT, there is a critical unmet medical need for this population that requires an urgent and immediate attention.
    Anavex Life Sciences Corp. is developing ANAVEX2-73 for the treatment of RTT. ANAVEX2-73 is able to restore nervous system function, thus providing potential relief to patients with RTT.
    The study will take place at investigational sites in Australia, Canada and the UK. Study participants are allocated by chance to receive one of two treatments, namely, an oral solution of the study drug (ANAVEX2-73) or an inactive solution which looks identical to the study drug solution, but has no pharmacological effects i.e. “placebo. One third of participants will receive placebo and two thirds will receive the study drug. In this 12 week study dosages are adjusted until the desired clinical effect is achieved. The aim of the study is to investigate the safety of the study drug, how well it is tolerated and its effectiveness in relieving the symptoms of RTT. Following this 12 week period, participants may roll over into a voluntary 48 week study in which both the researchers and participants will know which treatment is
    being allocated. This voluntary extension study will be extended further based on a favourable safety review by the Data and Safety Monitoring Board.

  • REC name

    London - City & East Research Ethics Committee

  • REC reference

    21/LO/0501

  • Date of REC Opinion

    1 Sep 2021

  • REC opinion

    Further Information Favourable Opinion