The role of carer- and patient-level characteristics on carer QoL v1.0
Research type
Research Study
Full title
Towards Integrated support: The role of carer- and patient-level characteristics on family CARER quality of life at different stages of dementia (iCARE)
IRAS ID
225765
Contact name
Eneida Mioshi
Contact email
Sponsor organisation
Norfolk and Suffolk NHS Foundation Trust Research and Development
Duration of Study in the UK
1 years, 11 months, 31 days
Research summary
Dementia is a progressive disease and carers may experience different caregiving issues at various stages of the illness. As such, establishing effective evidence-based interventions that can help caregivers manage challenging situations more effectively across the entire pathway of dementia care is critically important. To achieve this goal, a clear scientific approach is needed to identify carer- and patient-level predictors of care-related (specific) quality of life (QoL) at different stages of dementia. \n\nThe current study will recruit family carers of people with mild (n = 60), moderate (n = 60), and severe (n = 60) dementia. Carers will be asked to complete self-reported and interviews-based questionnaires that assess knowledge of dementia, physical health (comorbidity, sleep disturbance, nutrition), mental health (depression, anxiety), self-compassion, and care-related QoL. The patient-level factors, neuropsychiatric symptoms and activities of daily living, will also be assessed through carer interview.\n\nTo address the primary research question, a multiple regression analysis will be conducted. This analysis will test which carer- and patient-level factors predict Carer QoL in which stages of the disease. These variables are promising variable to explore in this area not only because of the empirical link with carer QoL but also because they are potentially manipulable through psychosocial interventions. The newly gained knowledge from this study will lead to the development of carer interventions that can help carers maintain their care-related QoL across the entire pathway of dementia care.
REC name
London - Hampstead Research Ethics Committee
REC reference
17/LO/0564
Date of REC Opinion
23 May 2017
REC opinion
Further Information Favourable Opinion