The Relationship Between Research and the Clinic in Cardiac Genetics
Research type
Research Study
Full title
The Relationship Between Research and Clinical Practice in Cardiac Genetics: An Ethnographic Examination of Research and the Clinic in the Field of Inherited Cardiac Conditions.
IRAS ID
223379
Contact name
Christopher Goldsworthy
Contact email
Sponsor organisation
University of Oxford
Duration of Study in the UK
0 years, 10 months, 18 days
Research summary
The primary objective of this research is to gain an understanding of the relationship between the clinic and research in cardiac genetics. This speciality has maintained a close interface between clinical and research settings from the development of inherited cardiac conditions services in the early 2000’s.
Gaining an understanding of the relationship between research and the clinic could yield important insights into the practical cultural and socio-economic aspects of the translation of research into clinical practice, as well as how clinical insight can be imported into research design and practice. Such insight is necessary at this time when clinicians and scientists are concerned that findings from large biomedical and genetic research projects are difficult to directly apply to clinic practice.
More over large research projects require a systematic reciprocal relationship with the clinical setting as a way to enrol participants. This has proved difficult, yet at the small scale, relationships between clinical ICC services and research have facilitated effective recruitment strategies based upon close working relationships.
To understand this relationship this research will utilise an ethnographic methodology across multiple sites within one geographic area. Observations will be undertaken of clinical and laboratory practice within the NHS as well as practices of translational and genomics research laboratories. Observations will also be undertaken of spaces in which there is an overlap between clinical-research practice, such as multi-disciplinary team meetings and conferences. Qualitative interviews will also be conducted with professionals across all sited to gain reflections upon research and clinical practice.
The primary outcome of this Institute for Science, Innovation and Society funded research will be the improved understanding of the relationship between research and the clinic. Such an insight can be applied to increase the efficiency of the process of translating novel technologies into clinical practice.REC name
London - Queen Square Research Ethics Committee
REC reference
17/LO/1414
Date of REC Opinion
16 Aug 2017
REC opinion
Favourable Opinion