The psychological impact of primary vs secondary immunodeficiencies
Research type
Research Study
Full title
The Psychological Impact of Primary and Secondary Antibody Deficiency on Immunodeficiency Centre for Wales Patients (PIPS)
IRAS ID
352359
Contact name
Stephen Jolles
Contact email
Sponsor organisation
Cardiff and Vale University Health Board
Duration of Study in the UK
0 years, 6 months, 30 days
Research summary
The aim of PIPS is to explore the psychological impact that Primary Antibody Deficiency (PAD) and Secondary Antibody Deficiency (SAD) diagnoses have on patients under the care of the Immunodeficiency Centre for Wales. This will be investigated through asking participants to answer questionnaires on this topic, with more in-depth insights from a subset of this sample being gathered using semi-structured interviews. We will also explore the similarities and differences between the psychological impacts of PAD and SAD diagnoses due to a lack of literature on this topic. We hope that the findings from this study will help us to better understand how to improve the wellbeing support provided by the service in future.
REC name
Wales REC 5
REC reference
26/WA/0011
Date of REC Opinion
30 Jan 2026
REC opinion
Further Information Favourable Opinion