The Psychological Experience of Anaphylaxis in Adulthood
Research type
Research Study
Full title
The Psychological Experience of Anaphylaxis in Adulthood: Exploring Patient-Centred Care
IRAS ID
162674
Contact name
Eleanor Bradley
Contact email
Sponsor organisation
university of worcester
Duration of Study in the UK
0 years, 8 months, 26 days
Research summary
Anaphylaxis is defined as “a serious allergic reaction that is rapid in onset and may cause death” (Sampson et al., 2006, p.392). Despite evidence that this condition is becoming increasingly common (Sheikh et al. 2008), research on the impact of living with anaphylaxis is limited and has generally focused on children. These studies have indicated a negative impact on quality of life and wellbeing in young people and their families (Akeson, Worth & Sheikh, 2007; Mandell, Curtis, Gold and Hardie, 2002; Rouf, White & Evans, 2011). Similar experiences of anaphylaxis in adulthood have not been previously investigated and are therefore poorly understood. Given that adults cope less well with traumatic events (Sigal & Weinfield, 2001) and illness uncertainty predicts poor psychological outcomes (Cohen, 2010), it is possible that anaphylaxis first experienced in adulthood may have a negative psychological impact on patients and their families. Understanding the psychological experience of anaphylaxis in adulthood will enable the identification of what is needed to better guide and support services and, ultimately, improve patient-centred care.
In light of the above findings, this study aims to: (1) Explore with patients, family members, friends and staff the psychological impact of anaphylaxis first experienced in adulthood and (2) Outline how the psychological needs of adults with anaphylaxis are currently addressed within an Allergy service.
In order to achieve these aims, a qualitative interview study is proposed in which semi-structured interviews are conducted with patients, family member/significant other and Allergy Clinic staff. This “multiperspective” interview design is useful in generating rich data to understand experiences and needs and generate practical recommendations for service improvement (Kendall et al., 2009).
REC name
North West - Preston Research Ethics Committee
REC reference
15/NW/0030
Date of REC Opinion
22 Dec 2014
REC opinion
Favourable Opinion