The Post-Stroke Emotionalism Cognition Questionnaire (PEC-Q) Version-2
Research type
Research Study
Full title
The Post-Stroke Emotionalism Cognition Questionnaire (PEC-Q): A development study
IRAS ID
200114
Contact name
Niamh McAleese
Contact email
Duration of Study in the UK
1 years, 5 months, 29 days
Research summary
Post-stroke emotionalism (PSE) is a neurological disorder that is characterised by sudden and uncontrollable episodes of laughter or crying. It can be congruent or in-congruent to a person's actual emotional state. Often the dramatic and uncontrollable nature of episodes can lead to distress and embarrassment (Moore et al., 1997). Studies suggest that those with PSE experience a reduced quality of life and social participation (Maruzairi & Koh, 2015). However the longer term impact of PSE is unclear and little is known about why clinical outcomes are so poor with this population. One hypothesis may be that patients develop negative illness representations about PSE which cause them to withdraw socially to avoid stigma or embarrassment (Rosen, 2008).
Aims:
This study aims to develop a questionnaire to measure illness cognitions in patients with PSE. This could be used in clinical practice for the early detection of those with more negativity about PSE with the aim of providing them with support at the early stages.Participants with PSE will be invited to participate in a semi-structured interview to identify aspects of their lives affected by PSE. The PI will use information from these interviews to develop questionnaire items. The PI will arrange a follow up contact with each participant to test the measure's face validity. The measure will be further refined by an expert panel to form the post-stroke emotionalism cognitions questionnaire (PEC-Q).
REC name
West of Scotland REC 4
REC reference
16/WS/0071
Date of REC Opinion
28 Apr 2016
REC opinion
Further Information Favourable Opinion