The Northern Region Young Persons' Malignant Disease Registry

• Research type

  Research Database

• IRAS ID

  354959

• Contact name

  Richard J. Q. McNally

• Contact email

  richard.mcnally@newcastle.ac.uk

• Research summary

  The Northern Region Young Persons' Malignant Disease Registry (NRYPMDR)

• REC name

  North East - Newcastle & North Tyneside 1 Research Ethics Committee

• REC reference

  25/NE/0070

• Date of REC Opinion

  16 May 2025

• REC opinion

  Favourable Opinion

• Data collection arrangements

  The registry collects is a database of patients aged less than 25 years both diagnosed with a primary cancer and treated for a primary cancer whilst living in North East England and North Cumbria.

• Research programme

  The registry is used for research, planning, and education so that the burden from cancer may be reduced and the patients’ experience and their outcomes improve.

• Research database title

  The Northern Region Young Persons' Malignant Disease Registry (NRYPMDR)

• Establishment organisation

  Newcastle University

• Establishment organisation address

  Sir James Spence Institute, RVI

  Queen Victoria Road

  Newcastle Upon Tyne

  NE1 4LP