The National PCD Registry version 1.0

• Research type

  Research Database

• IRAS ID

  306067

• Contact name

  Woolf Walker

• Contact email

  woolf.walker@uhs.nhs.uk

• Research summary

  The National Primary Ciliary Dyskinesia Registry: a multi-centre prospective longitudinal study

• REC name

  Yorkshire & The Humber - Leeds East Research Ethics Committee

• REC reference

  22/YH/0101

• Date of REC Opinion

  17 May 2022

• REC opinion

  Favourable Opinion

• Research database title

  The National Primary Ciliary Dyskinesia Registry: a multi-centre prospective longitudinal study

• Establishment organisation

  University Hospital Southampton NHS Foundation Trust

• Establishment organisation address

  Southampton General Hospital

  Southampton

  SO16 6YD