The More Life with CF Co-Design Study
Research type
Research Study
Full title
The Co-Design of a Cystic Fibrosis Weight Management Programme
IRAS ID
355378
Contact name
Joanne Barrett
Contact email
Sponsor organisation
University of Birmingham
Duration of Study in the UK
0 years, 6 months, 2 days
Research summary
Cystic Fibrosis (CF) is a condition that some people are born with. It causes lung failure, digestive problems, and a shorter life expectancy. People with CF (PwCF) are advised to eat a high-calorie diet. This diet has helped PwCF to become well-nourished and live longer. However, some PwCF are now becoming overweight. This is because new treatments called Cystic Fibrosis Transmembrane Conductance Regulator (CFTR) therapies are helping treat CF, reducing the need for a high-calorie diet. PwCF now need weight management programmes to support them in adopting a healthy diet and becoming more active. This will help them manage their weight and reduce their risk of developing additional health problems such as heart disease, diabetes, and cancer.
Online NHS weight management programmes do not meet the specific, complex needs of people living with cystic fibrosis. However, a combined approach to weight management, using an existing online NHS weight management programme and developing a CF-specific programme to be delivered alongside it, would provide the additional content and support necessary to meet these complex needs.
This study aims to work with people living with CF, CF health care professionals, behaviour change experts and weight management providers to develop a CF weight management programme to be delivered alongside an online NHS weight management programme.The co-design work will be informed by the findings of our proceeding research that identified the barriers and facilitators to the adoption of healthy eating and physical activity of people living with CF and overweight and obesity, and the CF health care professional experience of providing weight management advice.
REC name
Yorkshire & The Humber - Bradford Leeds Research Ethics Committee
REC reference
25/YH/0189
Date of REC Opinion
12 Sep 2025
REC opinion
Further Information Favourable Opinion