The lived experience of Cauda Equina Syndrome
Research type
Research Study
Full title
The lived experience of Cauda Equina Syndrome: A qualitative analysis
IRAS ID
183082
Contact name
Rosie Evans
Contact email
Sponsor organisation
Oxford Health NHS Foundation Trust
Duration of Study in the UK
0 years, 10 months, 30 days
Research summary
This project will investigate the psychological and social impact of Cauda Equina Syndrome (CES); a spinal cord injury resulting in bladder, bowel and sexual problems. There is currently no research into the psychological and social impact of CES, and the condition has been highlighted as research priority by the Spinal Cord Injury Priority Setting Partnership. This qualitative project aims to address this gap in the literature and to better understand the experiences of people living with CES so that services and clinicians are better informed to meet their needs. The project will recruit 10-12 adults who have had a diagnosis of CES for at least one year, to complete one research appointment involving an interview about how CES has affected their life and a questionnaire about their injury. Appointments will be offered face to face or via Skype and will last approximately 1.5 hours. Participants will be reimbursed £20 for their time and travel expenses. Participants will be recruited from the Cauda Equina Syndrome UK Charity, and three different patient identification centres (PICs); Buckinghamshire Healthcare NHS Trust, Sheffield Teaching Hospitals NHS Foundation Trust and the Royal National Orthopaedic Hospital NHS Trust. The project will be sponsored by Oxfordshire NHS Foundation Trust as part of a Clinical Psychology doctoral thesis.
REC name
South West - Cornwall & Plymouth Research Ethics Committee
REC reference
15/SW/0227
Date of REC Opinion
28 Aug 2015
REC opinion
Favourable Opinion