The information needs of patients with chronic kidney disease- vs 1
Research type
Research Study
Full title
What information do adult patients require when referred to secondary care for diagnosis and management of chronic kidney disease and how do they want it delivered?
IRAS ID
148114
Contact name
Julie Irwin
Contact email
Sponsor organisation
Buckinghamshire New University
Research summary
Chronic kidney disease (CKD) is a long-term condition which can be progressive and in some cases lead to end stage renal disease requiring renal replacement therapy or kidney transplantation. The National Institute for Health and Care Excellence clinical guideline 73 recommends that patients with CKD are referred to secondary care for specialist management and should have the opportunity to make informed decisions about their care and treatment in partnership with their healthcare professional. It is advised that patients, families and carers should be given information tailored to their stage and cause of their CKD, the associated complications and risk of progression. It is suggested that when developing information or education programmes that people with CKD should be involved in their development.
Few studies exist looking at patient information needs in long-term conditions and none have been identified in the area of CKD. This study is therefore necessary to identify what information adults with CKD are currently receiving and by what methods. It aims to better understand their preferences with regard to information needs and its delivery. Adult patients diagnosed with CKD and attending the nephrology clinic will be studied and invited to complete a questionnaire. The results will be analysed in order to inform and advance practice. The study forms part of the researchers dissertation module for their Msc Advanced Nurse Practitioner award.REC name
North West - Liverpool Central Research Ethics Committee
REC reference
14/NW/0181
Date of REC Opinion
14 Mar 2014
REC opinion
Favourable Opinion