The impact of caring for someone with Mild Cognitive Impairment

  • Research type

    Research Study

  • Full title

    The psychological impact of caring for someone with Mild Cognitive Impairment: A qualitative study

  • IRAS ID

    176859

  • Contact name

    Polly Pulford

  • Contact email

    p.pulford@surrey.ac.uk

  • Sponsor organisation

    University of Surrey

  • Duration of Study in the UK

    1 years, 0 months, 20 days

  • Research summary

    Mild Cognitive Impairment (MCI) is a diagnosis that is becoming more widely researched, as it is thought to be a marker of the beginnings of dementia; people with MCI are at a higher risk of developing dementia in the future than those without MCI. Much of the existing research has focused on the neuropsychological symptoms and how the people with MCI have experienced the diagnosis and the changes that this has bought with it. However, the impact of the diagnosis on the spouses and family members is not well known.

    In dementia, there has been a vast amount of research into the impact it has on the support networks of those individuals. This study aims to look at the impact right at the beginning of the process, for the relatives of those with MCI. It is important to understand the psychological impact of having a relative diagnosed with MCI, the changes this might bring about in the relationship, and what support people think would benefit them. This will give a better understanding of the needs of people who support those with MCI.

    The study aims to investigate this using a qualitative approach. Spouses or close relatives of people with MCI will be identified via memory clinic appointments they have attended with their relative. They will be asked to take part in audio-recorded interviews of roughly one hour. Some of the material could be distressing, and therefore the CI will ensure participants are aware that they do not have to discuss anything they do not wish to. Interviews will take place in a clinic setting or in people’s homes, using Surrey & Border’s Lone Worker policy to ensure researcher safety.

  • REC name

    East of England - Cambridgeshire and Hertfordshire Research Ethics Committee

  • REC reference

    15/EE/0238

  • Date of REC Opinion

    22 Jul 2015

  • REC opinion

    Further Information Favourable Opinion