The experience of living with dementia and dysphagia in care homes
Research type
Research Study
Full title
Understanding the eating and drinking experiences of people living with dementia and dysphagia in care homes
IRAS ID
242293
Contact name
Lindsey M Collins
Contact email
Sponsor organisation
University of Bradford
Duration of Study in the UK
1 years, 2 months, 8 days
Research summary
This study is funded by an Alzheimer’s Society clinical training fellowship (PhD).
Background: Dysphagia refers to eating, drinking and swallowing difficulties. An estimated 50% of people living with dementia will develop dysphagia at some stage, with this number increasing to up to 93% of people living with dementia in care homes. Dysphagia can significantly impact physical and psychosocial needs. Speech and Language Therapists (SLT) are the core health profession for providing support for dysphagia.
Aims: To explore the eating and drinking experiences of people living with dementia and dysphagia, from their perspective and the perspectives of their family carers and formal care staff; identify factors that impact on well-being for people living with dementia and dysphagia; and determine the experiences of SLTs in working with people living with dementia and dysphagia in care homes.
Design and methods: The first part (completed with University ethics’ approval) of this two part qualitative study involved semi-structured interviews with people living in care homes. In the second part of the study, which is anticipated to take up to six months, there will be four participant groups: people living with dementia and dysphagia in care homes in the North of England; care home staff; family carers; and SLTs. Data will be collected using semi-structured interviews, structured observations using Dementia Care Mapping and focus groups and will be analysed using thematic analysis.
Expected outcomes: This is the first study that seeks to explore and understand the experiences of living with dysphagia from the multiple perspectives of people living with dementia and dysphagia, family members, care staff and SLTs. The findings will inform care practices for care home staff and healthcare professionals both nationally and internationally to support the physical and psychosocial needs of individuals living with dementia and dysphagia in care homes.
REC name
Yorkshire & The Humber - Bradford Leeds Research Ethics Committee
REC reference
18/YH/0281
Date of REC Opinion
20 Aug 2018
REC opinion
Further Information Favourable Opinion