The experience of COPD in working age adults: A framework analysis
Research type
Research Study
Full title
The experience of Chronic Obstructive Pulmonary Disease in working age adults: A framework analysis
IRAS ID
221004
Contact name
Amanda C de C Williams
Contact email
Sponsor organisation
University College London
Clinicaltrials.gov Identifier
Z6364106/2017/01/80 , UCL data protection
Duration of Study in the UK
1 years, 0 months, 1 days
Research summary
Increasing numbers of people of working age are being diagnosed with Chronic Obstructive Pulmonary Disease (COPD). Under 65s with COPD have poorer health related quality of life than over 65s. This study will explore the experience of having COPD, for people who are under 65 years of age. It is hoped that this will allow a greater understanding of the needs of this population.\n\nThe specific research questions are:\n\n* What is their understanding of, and relationship to, COPD?\n\n* What priorities and concerns are important given their life stage?\n\n* Has COPD affected or changed their priorities or concerns?\n\n* Has COPD affected their ability to participate in day to day life in important areas?\n\n* Do services provide the help they need to manage COPD?\n\nData will be collected by semi-structured interviews. In addition, quantitative measures will be administered: The St. George’s Respiratory Questionnaire: SGRQ (a COPD-specific measure of Health Related Quality of Life), The Patient Health Questionnaire 9: PHQ-9; and General Anxiety Disorder Questionnaire 7 Item Scale: GAD-7 (measures of depressed mood and anxiety), and the Dyspnoea-12 scale: D-12 (measures physical and affective aspects of dyspnoea). Basic personal and medical information will also be collected from participants, such as age, gender, previous contact with the service, time since COPD diagnosis, and summary of employment history.\n\nThe research is being conducted as the major research project of a Doctorate in Clinical Psychology with University College London’s Research Department of Clinical, Educational, and Health Psychology. It is being funded by this academic department. The study will be conducted in partnership with the Adult Respiratory Care and Rehabilitation Service at Mile End Hospital. Participants will be recruited from this service.\n\nThe interview transcripts will be analysed using framework analysis. Quantitative data will be presented as descriptive statistics and interpreted in the context of clinical meaning of scores.
REC name
North West - Preston Research Ethics Committee
REC reference
17/NW/0454
Date of REC Opinion
3 Aug 2017
REC opinion
Favourable Opinion